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Thread: Talk about your troubles

  1. #7011
    Trouble in my life just1paul's Avatar
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    Re: Talk about your troubles

    Unklescott - I missed the posts about Zac. I just want you and he to know that even if I do not post all the time, I am following his progress and am thinking about him.


    KeepItReal - After a short while, I am sure that whatever your son needs to do will become second nature. My thoughts are with you.

  2. #7012
    MRD
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    Re: Talk about your troubles

    Keepitreal, So sorry to hear about your son's illness. Prayers being sent for all of you. As a mom, I know how you feel about wanting to take it on yourself and spare your child.
    There is a lot of research being done on diabetes right now. I just saw something the other night about it. Something to do with islet cells and they honestly think that a huge breakthrough is coming that would mean getting people off of insulin. I will pray that they are able to find this breakthrough soon.
    Que me amat, amet et canem meum
    (Who loves me will love my dog also)

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    Me and my shadow Gutmutter's Avatar
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    Re: Talk about your troubles

    KeepItReal - So sorry about your son's diagnosis. That's a rough one. It will become routine to deal with it, but he will have to be careful about monitoring sugar and carbs, etc. Hugs to you both.

    Unklescott - Poor baby, keep us posted on his progress. You're all in my heart and prayers.
    Count your blessings!

  4. #7014
    FORT Fogey Add It Up Champion famita's Avatar
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    Re: Talk about your troubles

    KeepItReal, I'll be thinking about you! My ex and his dad were juvenile diabetics, a grandparent from both sides of my family,... and I am diabetic. It seems overwhelming at first, but the education makes it a lot simpler. There used to be camps for diabetics where they would teach children about eating habits, and testing, and exercise...the whole ball of wax. As a parent, I know the feeling of wanting to take all the pain away.

  5. #7015
    FORT Fogey Margaritaville's Avatar
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    Re: Talk about your troubles

    KeepItReal - I am so sorry to hear of your son's diagnosis. I'm sure it will be a hard adjustment for both of you. Like MRD said, they are continuing to make strides in diabetic care every day - chin up! I know of a few teens who were given the insulin pump as it is much easier for them during school and activities - really lessens their need to stop and check blood sugar and adjust dosage all the time - maybe you could check with his doctor about that? It is probably pretty expensive, but might just be worth it to all of you. I will keep you in my thoughts and prayers, and please keep us posted!

  6. #7016
    all hot air Ana Bannana's Avatar
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    Re: Talk about your troubles

    Hey Unk - I am sorry to hear your grandson is having a tough battle. Please know that there are prayers coming from the mitten.

    KeepItReal - Hoping & praying for the best for your son. Sounds like there are others that posted some great advice here.

  7. #7017
    FORT Fogey KeepItReal's Avatar
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    Re: Talk about your troubles

    Thanks everyone for the thoughts and advice. I've been researching the insulin pumps and had also heard about some of the new research involving islet cells and something regarding cells from the spleen, I have my fingers crossed. I think the complications that can develop and hearing all of the horror stories have really sent me spinning.

    My son also has high functioning autism. Because of this it is always a challenge to prove to a new doctor that he can handle the responsibility of something like a pump. His general practitioner is sure that he can and said that she'd support our decision to get one. The pump run around $6000 each, so they say I may have a fight from the insurance company. They already don't cover his needles, but that should be settled by the time I fill his next prescription hopefully.

    Once again thanks for the support. It is truly appreciated.
    Last edited by KeepItReal; 09-19-2008 at 04:56 PM.

  8. #7018
    FORT Fanatic onei0091's Avatar
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    Re: Talk about your troubles

    Quote Originally Posted by KeepItReal;3201654;
    Thanks everyone for the thoughts and advice. I've been researching the insulin pumps and had also heard about some of the new research involving islet cells and something regarding cells from the spleen, I have my fingers crossed. I think the complications that can develop and hearing all of the horror stories have really sent me spinning.

    My son also has high functioning autism. Because of this it is always a challenge to prove to a new doctor that he can handle the responsibility of something like a pump. His general practitioner is sure that he can and said that she'd support our decision to get one. The pump run around $6000 each, so they say I may have a fight from the insurance company. They already don't cover his needles, but that should be settled by the time I fill his next prescription hopefully.

    Once again thanks for the support. It is truly appreciated.
    I'm sorry to hear about your son's recent diagnosis, KeepItReal.

    That insurance stuff makes me SO mad. I don't understand why things like pumps and needles aren't covered, they are life saving tools. What the *(@! is that about?!?!

    My cousin just had a child that was found to have a biotin deficiency. Without a daily dose of biotin medicine, he would get very ill and die. The medicine isn't covered by their insurance, and it's quite expensive. Guess what IS covered? Viagra. Come ON, how screwed up can a system get? I have been writing letters to our local representatives and the like on behalf of my cousin's child. It's just not right. We need to change this stuff around so that life saving treatments are covered.

  9. #7019
    FORT Fogey KeepItReal's Avatar
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    Re: Talk about your troubles

    Quote Originally Posted by onei0091;3201662;
    I'm sorry to hear about your son's recent diagnosis, KeepItReal.

    That insurance stuff makes me SO mad. I don't understand why things like pumps and needles aren't covered, they are life saving tools. What the *(@! is that about?!?!

    My cousin just had a child that was found to have a biotin deficiency. Without a daily dose of biotin medicine, he would get very ill and die. The medicine isn't covered by their insurance, and it's quite expensive. Guess what IS covered? Viagra. Come ON, how screwed up can a system get? I have been writing letters to our local representatives and the like on behalf of my cousin's child. It's just not right. We need to change this stuff around so that life saving treatments are covered.
    ITA-I've always felt that it is so wrong when people pay their insurance premiums faithfully only to face an illness and find out how many things are not covered. Just found out a couple of hours ago that the needles will not be covered, and found out that our insurance is not the only one that does this. My neighbor just informed me that she has to pay for her needles as well. My son was issued an insulin pen which requires a needle that costs me $60 for a box of 100. Taking at least 5 shots a day as well as training others to use them and wasting quite a few (at least for now), I can already see that this is going to get expensive pretty quickly. The cheaper needles are more painful than the type he's using now, so I will be sticking with these.

    As for your little cousin, it truly perplexes me that a medication that can save this child's life is being denied to him, and yet it happens to families everyday. Meanwhile as you say Viagra is covered, which I have no problem with as long as they cover the life saving medications as well. In the end you're stuck appealing denials and praying that you'll find a loophole.

  10. #7020
    FORT Fogey Margaritaville's Avatar
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    Re: Talk about your troubles

    I would check with the medical part of your insurance since the pharmacy part of your insurance will not cover the pen needles. Sometimes the medical part (the company that pays the doctor/hospital instead of the pharmacy company) will pay for medical supplies. Also, I would call the pharmacy customer service # on your insurance card and ask how the prior auth process works. Sometimes, in the case of children, the doctor can fill out a form to request an exception be made for the pen needles as kids are less likely to be able to inject themselves accurately without a pen. It would sure be worth a shot to try each of these avenues.

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