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Thread: Talk about your troubles

  1. #311
    FORT Fogey CharlieBug's Avatar
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    Combat, I am so sorry to hear that. How long after she comes to does she finally realize who she is and what's going on? That's so scary! When is she going to see a specialist? She'll be in my prayers.

  2. #312
    FORT Fogey Pyramid Solitaire by Disney's Tangled Champion combatcutie's Avatar
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    Thanks CharlieBug. I'm not really sure. My mother just found out today from my grandmother, who is very old and forgets alot. My mother is going to call her sister and find out exactly what is going on. From what I understand, she isn't supposed to go to the specialist until January
    I can only please one person a day, today is not your day and tomorrow doesn't look good either

  3. #313
    Angel boy
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    I'm so sorry to hear that combat. You and your family are in my prayers.
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  4. #314
    FORT Fogey CharlieBug's Avatar
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    She has to wait that long?! I would be VERY upset if someone told me my child had to wait three more months to see a specialist about a serious problem they are having NOW. This has got to be so frustrating for everyone. Please keep us updated and know that we're here for you.

  5. #315
    First time caller Spoose's Avatar
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    Sorry to hear about your goddaughter's seizures and long wait for a specialist, combatcutie!! I, unfortunately, can relate to the long specialist wait and it doesn't exactly have a happy ending.

    Just over a year ago, I started feeling sick...coughing, light headed and short of breath. My family doc insisted it was asthma and put me on inhalers...without a blood test or workup or anything. Two weeks later, I was worse, to the point where I had to quit all my activities (I was VERY active at the time) and it was affecting my work. She put me on stronger asthma medication. One week later, I was coughing up blood and basically turning blue. I told her, in tears, that I didn't think it was asthma. She looked at me and asked, 'well, what do YOU think it is??'. I couldn't believe it. I'm not a medical professional!! I told her I didn't know, but I was worried there could be something wrong with my heart (I was only 25 at the time, but my father had heart and blood problems--both of which I told her about--so you never know).

    So she said she would book an echocardiogram for me with a heart specialist. In a month. I couldn't walk more than 10 steps without stopping to catch my breath and I was constantly coughing. My quality of life was crap. I know I should have gone straight to the ER at that point, but for some reason, thinking I was already receiving medical help, I went home and waited. Two weeks later, my mom came to see how I was doing, realized the state I was in and rushed me to the emergency room. They did a complete blood workup and CT scan and identified over 100 blood clots in my lungs. My oxygen saturation was below 85% (they usually put you on oxygen when you drop below 95%). I was admitted (obviously) into the acute cardiac care ward where I stayed on clot busters and blood thinners for 10 days.

    I finally got in for the echocardiogram which showed my heart was enlarged from the stress it was under trying to pump enough blood to my lungs to transfer the oxygen. More than once, when new doctors and interns would visit me and hear my story, I was told how lucky I was to be alive.

    I was released with home oxygen therapy on my promise I wouldn't return to work for at least a month. (This all happened at the beginning of last December, and I just wanted to be home in time for X-mas!!). I assumed everything would be alright and my life would get back into order in no time.

    It has been over a year since the symptoms started and I am still struggling. It turns out I have a clotting disorder which aggravated the situation last year (a simple blood test by my family doc would have shown a problem, but she didn't do anything). Allowing the clots to build up for so long damaged my lungs severely, and I've just found out that the old clots have actually formed masses in my lungs, cutting my lung capacity in half. Surgery may be the only option to remove them and restore any type of lung capacity. There is a possibility I am forming more clots every few weeks since I am symptomatic every now and then. I returned to work in April, but I have slowed down considerably. I don't even think about taking the stairs. I can walk short distances only. I have a disabled parking pass. My quality of life is very poor--and I'm 26 years old. My NEW family doctor finally recommended a pulmonary rehab program for me to start exercising (monitored, on oxygen), but since I can't regain any lung capacity without removing the clots, I'm not getting any better.

    Whew! That's my story, sorry it was so long but it feels better already! For those of you wondering, I am thinking about legal action against my original family doctor, since it is unlikely I will ever be able to take a 'normal' job. My current job allows me tons of flexibility to go to the doctor and take time off, but unfortunately, my contract is up in 6 months. This summer, once I realized how close I was to death and how much this is going to impact the rest of my life (and my family's life!!) I had to seek counselling...I was a mess! I'm dealing with it better now, but every trip to the doctor/specialist (34 times in the last 54 weeks) brings new information and challenges.
    Don't let the small things sweat

  6. #316
    FORT Fogey Pyramid Solitaire by Disney's Tangled Champion combatcutie's Avatar
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    Oh wow Spoose, you will be in my thoughts and prayers. The doctor could have save you from this with just one simple little test But no, she didn't listen to you. Don't you just want to smack doctors now a days?
    I can only please one person a day, today is not your day and tomorrow doesn't look good either

  7. #317
    Angel boy
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    Oh, Spoose!! I am just so very sorry that is happening to you. It's amazing how we put all our faith in our trusted doctors, only to find out they cannot always help us (in your case, it's because they were negligent in not doing a more thorough physical). My prayers are for you to have a happy, long, and pain free life.
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  8. #318
    FORT Regular DisFUNctional's Avatar
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    wow spoose...i do hope that you start getting better and that the legal actions go well...your original doctor should not be practising anymore. Good luck with everything

  9. #319
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    Spoose,
    I don't want to be accused of being an overly litigious attorney but you should definitely take legal action. If nothing else, to make sure your arrogant former family doctor never ignores a patient's concerns again and to make sure you'll be taken care of and have your expenses covered. For instance, your counseling should be paid for by the doctor and her employer. Make sure to take action right away. If you wait too long, a statute of limitations on bringing any action may run.

  10. #320
    Just Forting Around roseskid's Avatar
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    Oh my, Spoose. I am so sorry to hear about the health problems you have been experiencing . I have had 3 surgeries on the vertebra in my neck, and have had quite a decrease in the quality of my life, too. I always felt I was too young to be going through all this, and I'm 53. I can't imagine being 26, and having the clotting, and lung problems you are having. I'm so glad you have posted here, and hope you feel a little better for having done so. Please know that a lot of us will be praying for your and sending good thoughts your way. Feel free to pm me, too, if you want. Keep us informed on how you are doing, ok? Let me know if I can help you in any way .

    Combat, I'm very sorry to hear about your goddaughter, too. Seizures can be very scary. A little neighbor girl of mine had seizures mysteriously start at around 11. She had a few, had all kinds of tests done, but they never found anything wrong with her. As mysteriously as they started, they mysteriously ended. She just turned 16, and since 11, she's never had them again. I hope the same thing happens to your goddaughter.
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