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Thread: Talk about your troubles

  1. #11031
    FORT Fogey Debb70's Avatar
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    Re: Talk about your troubles

    My dad has been hospitalized twice recently. He suffers from seizure like episodes. He almost passes out, his neck muscles swell and contract, he jerks like in a seizure. Later he feels exhausted. Most of the time he feels tired and like he's in a fog state. THey have conducted all kinds of tests on his brain, heart, blood, etc. (Right now he's wearing a heart monitor.) He has suffered corornary heart disease since 2000. He was diagnosed with hypothyroidism and is taking meds to get that right. They can't attribute the spells on any one thing though.

    We are afraid to leave him alone. We don't know what to do if they can't find the cause. I'm trying to find a doctor who will really try to find out the cause. There aren't many doctors like House, who will put all their focus on his case until they figure it out. Any suggestions would be appreciated.

  2. #11032
    Me and my shadow Gutmutter's Avatar
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    Re: Talk about your troubles

    Sorry things are so difficult for him. I don't have any advice, but I hope they find what's wrong.
    Count your blessings!

  3. #11033
    FORT Fogey Debb70's Avatar
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    Re: Talk about your troubles

    Quote Originally Posted by Gutmutter View Post
    Sorry things are so difficult for him. I don't have any advice, but I hope they find what's wrong.
    Thank you so much. I appreciate that.

    I think doctors just run the tests and rule out this or that. Then they go to the next lists of tests. I don't think they actually sit down and do any comprehensive brainstorming or researching. If it's not obvious, they aren't going to deal with it. I have to be my dad's advocate.

  4. #11034
    Signed, Sealed, Delivered prhoshay's Avatar
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    Re: Talk about your troubles

    Some probably do; some probably don't. Even the guy who graduated last in the class is called "Doctor". Keep asking for referrals from the doctors and friends.
    "...each affects the other, and the other affects the next, and the world is full of stories, but the stories are all one." - Mitch Albom, one helluva writer

    When you throw a rock into a pack of dogs, you know which one you hit by the one that yelps!

  5. #11035
    Never too old to Twinkle! AZChristian's Avatar
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    Re: Talk about your troubles

    Do you live anywhere near a teaching hospital? A heart-specialty hospital?

    I understand your frustration. We are fortunate here in Arizona that lots of good heart doctors live here to help the old people. One reason I would never move to a smaller town is my concern about medical care.

  6. #11036
    PWS
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    Re: Talk about your troubles

    Debb, the NY Times Sunday magazine has a weekly diagnosis "puzzle" column....and I know it has a website because the author writes about how many people got it right and who was the first. It would be tempting to post your dad's symptoms there and see what they come up with, if that's allowed. Or maybe there is even information there about where you can find the best diagnosticians, the real Dr. Houses.
    I agree, a teaching hospital might be your best bet....or some place like the Mayo Clinic, that is highly reputable but not so specialized as say, Sloan Kettering is for cancer. You want people with a variety of experiences looking at his case, not only heart specialists or nerve specialists or thyroid specialists. Crossing my fingers for you all and your dad.

  7. #11037
    FORT Fogey Debb70's Avatar
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    Re: Talk about your troubles

    Thanks for all the suggestions. I'll try them.

    We do live in a great area for hospitals. My dad used to go to Duke for his heart issues, but they missed something with my dad a few years ago and he switched to a different place. His present cardiologist is awesome, but he's good at what he knows. If it's not heart or vascular, then it's not something he's into. I have met with him and he isn't invested in finding a zebra, IMO. I'll see how my dad feels about returning to Duke. Of course, that will mean more tests. His out of pocket costs for all the tests they did is unreal. I'm not sure he'll go for that again. Plus, when they did the MRI, they screwed up the solution in his arm, it ran all over him. They had to clean it up, redo it, and start over! It was not a good experience for him. If you've had one, you know what I mean.

    I also spoke with the neurologist. He was stumped too. He didn't seem to be concerned with looking any further than the test results. It's like, if he hasn't heard of it before, then it's over. Next patient please.

    My dad is 75 years old. I hate to say it, but I think they might be more invested in finding out the cause if he were a younger person. My dad is young for his age. He has always been active and vibrant. I think he has many good years ahead. I'm going to do everything I can to ensure that.

  8. #11038
    Signed, Sealed, Delivered prhoshay's Avatar
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    Re: Talk about your troubles

    I think teaching hositals are your best bet. Not only are they teaching the latest line of thinking, but they are also up on who's who in many fields. I think they have access to the greatest and most curious minds.

    I think a question that I might ask doctors is, "If this was YOU or your dad/close family member, whom would YOU want to deal with?" You'll usually get a pretty honest answer.
    Lizard, AZChristian and Debb70 like this.
    "...each affects the other, and the other affects the next, and the world is full of stories, but the stories are all one." - Mitch Albom, one helluva writer

    When you throw a rock into a pack of dogs, you know which one you hit by the one that yelps!

  9. #11039
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    Re: Talk about your troubles

    Yes, if his doctors aren't interested in searching further, ask them where they recommend you go next.
    Count your blessings!

  10. #11040
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    Re: Talk about your troubles

    I think the suggestion of going to a large teaching hospital is a good one.

    One other thing you might want to check. Could it possibly be a side effect from a medication he is on? I know of 2 cases of people with symptoms for which doctors could find no cause. In one case they called in a new doctor and he figured out pretty quickly that the symptoms were side effects from a drug she had been on for a few months. It took a while for the symptoms to present themselves.

    In the second case, the family got so frustrated that they took her off all her meds. Within 2 weeks the symptoms were gone. I'm not suggesting you do that, but do some research on the drugs he is taking. Even if he has been on them for a while.
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